May 4th

I had to look up the date for the second time today. It is a reflection of the fact that time moves at a different rate and some times stands still in the Kinberg household. It is as if days pass and the date and time are not relevant because everything revolves around doctors appointments, test that are scheduled, test results that are pending and dealing with the physical & emotional struggle that comes with this type of medical situation. Living day by day has become a necessity for us. We have talked about it, but rarely do we ever really do it. As we wait for two pathology results to be determined - we must focus on the day that we are in. We have been in the place where we have assumed that the results were going to be given the next day and have been dissapointed when they did not come. It is to difficult to think about "when" the results will be given.
The 'not knowing' is not the most difficult part - it is the 'not doing' that is the hardest. It is as if the 'diagnoses' that will be given don't even matter anymore, it is the treatment plan that is important. We must have more information before treatment is to begin - so we will have to keep testing and waiting - but ultimately they can label the masses 'anything' and the most important information for us is what treatments are available and how effective are they. This is not to insinuate that the doctors are not working as quickly and as diligently as they can to diagnose and treat Robert. We can not express the amount of admiration and trust we have in the team of doctors that are fighting for us and with us. They are compassionate and caring and we pray for them to find the answers and celebrate Robert's recovery with us.
There have been inspirational moments and moments of recognition that we are surrounded by so many good people and it does keep our spirits raised.
On April 19th our friends supported us in raising 1,000 at our charity yard sale. They were planners, organizers, contributors, photographers, and the most amazing sales people. They arrived early and stayed late to keep pushing to do more. They raised awareness of brain cancer and raised money for critical research. They did it all with great energy and spirit. They are our never ending cheerleaders and we are forever grateful.
On May 3rd we completed the Race For Hope-DC surrounded by friends and family. Things were different then the year before and yet the inspiration and overwhelming emotion the the day remained the same. The team was bigger, the t-shirts were new (and GREAT), and the weather was different. The day that we had been planning for - for so long came and went quickly. Robert was able to attend and was pushed in a wheelchair by his brother. Having friends that will travel to DC in the rain and walk with us is an unbelievable act of support and we feel thankful to have so many people to call 'friends' We thank everyone who supported us through donations and know that you have made a difference in our lives and the lives of others.
There are so many people to thank- We thank those that bring us food, plant & deliver flowers for the sole purpose of giving them to others, send us messages of encouragement, send parking & food coupons for Hopkins, donate t-shirts, design/copy pamphlets, give an i-pod gift card so that we can find the music that helps to sooth our souls, arrange for a free haircut, arrange for baseball games and batting practice, who read this blog, give their time & energy to raise money and support our charities, and care for our children.
Thank you to those that make us laugh and allow us to be the center of attention. We look forward to the day that we hold conversations that involve other people.
Thanks to all!