I have attempted to send Thank you letters to all of those who donated to the Race For Hope - DC and always fear that I am missing someone. I will post the Thank you letter here for anyone who may have been innocently skipped. Please know that we are thankful to everyone.
Robert, Tammy, Bryce, & Trey
It has been two weeks since we completed the Race For Hope- DC and it is still a strong inspirational and emotional moment that will stay with us always. Our team came together in the rain and we walked the 3.2 miles together. The experience gives us hope and an appreciation for the moment in time that we are able to be there together.
Your donations give us hope that better treatments and a cure will be developed through the research that will now happen. Your act of donating gives us emotional support that keeps our spirits lifted and keeps us better able to fight. Your constant good wishes give us a sense of peace that we are cared for. We are happy to have you in our lives. Thank you.
Robert, Tammy, Bryce, & Trey Kinberg
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My Condition - Glioblastoma Multiforme (or GBM)
I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.
Astrocytoma
An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.
The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.
The WHO classification divides astrocytomas into four grades:
- Grade I Pilocytic Astrocytoma
- Grade II Low-Grade Astrocytoma
- Grade III Anaplastic Astrocytoma
- Grade IV Glioblastoma Multiforme (or GBM)
Characteristics
The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.
Symptoms
- Headaches
- Seizures or convulsions
- Difficulty thinking or speaking
- Behavioral or cognitive changes (related to thinking, reasoning, and memory)
- Weakness or paralysis in one part or one side of the body
- Loss of balance
- Vision changes
- Nausea or vomiting
2 comments:
We pray you find the strength to question and believe...
We pray you find moments of sleep and rest to cleanse your spirit and renew a sense of fight and passion
We pray for you to find that miracle cure in the midst of treatments and trials...there is the good news in this life- as you so eloquently say it...the diagnosis LOVE!
The good Lord is carrying you up the steps to your next appointments...that gentle breeze of courage you feel..that is Him. The inspiration of hope and knowledge in Robert's healing...that gust of glory is from Him. Know HE is with you. Know that He has you and yours and hold on that much tighter and with that much more fear...you have a gift to see that life is just that..the present. The gift is what we have to live life for now.
Thank you for sharing your strength and courage with all of us...your plight is not at all alone...you are so very loved and constantly being prayer for!
We love you so very much and as we wish we could wipe away this storm, be by your side to walk next to you...wipe your tears and inspire a giggle or two amidst the breezes of burden and fear...know that we are so very much consumed with Robert fighting this and being helaed.
He makes all things beautiful in time. Ephesians 13
XOXO
ANg, CHuck, Gabbi and Maddi girl
When I say my daily prayers I pray for wisdom for the doctors who are treating Robert. I pray for strength and courage for you all. I pray for the right words of comfort for you. I pray that you will reach out if I can help and I thank the Lord for your friendship and your willingness to share your journey which inspires and amazes us all. God Bless you all!
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