Thursday, February 19, 2009

Feb. 19

We are doing well and keeping active - which is a good thing. The boys are well and so we are well. They are growing, playing, and learning at a rate that is astonishing to Robert and me. They surprise us every day. I watch them play and am reminded of their ability to,live in the moment and be totally focused on the activity in which they are engaged in at that moment. I wish that, as an adult, we had the ability to truly focus on the moment without the worries or stresses we have creeping in on and infringing on our bodies and minds. There are situations that we are totally engrossed in the moment, but the seem to be the exception rather then the rule. We have a lot to learn from our children - they play hard and love hard.
They are innocent in their actions toward each other. They are open minded, open hearted, and open to the diversity that surrounds us. They are forgiving and loyal to each other and share with out hesitation. Each day I will focus on sharing or doing something thoughtful in the hope that everyone else will do the same.

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My Condition - Glioblastoma Multiforme (or GBM)

I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.

Astrocytoma

An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.

The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.

The WHO classification divides astrocytomas into four grades:

  • Grade I Pilocytic Astrocytoma
  • Grade II Low-Grade Astrocytoma
  • Grade III Anaplastic Astrocytoma
  • Grade IV Glioblastoma Multiforme (or GBM)

Characteristics

The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.

Symptoms

  • Headaches
  • Seizures or convulsions
  • Difficulty thinking or speaking
  • Behavioral or cognitive changes (related to thinking, reasoning, and memory)
  • Weakness or paralysis in one part or one side of the body
  • Loss of balance
  • Vision changes
  • Nausea or vomiting