Saturday, March 29, 2008

March 29th

Our week has gone well. Robert worked each day since his appointment on the 24th and even had some energy to spare. I honestly don't know how he does it- going to work each day and working longer days to make up for the time missed on Monday. He has some inner strength that keeps him energized throughout the week. Robert begins his third round of chemo this Sunday and we know that this means he will most certainly be more fatigued. We look forward to resting this weekend in preparation of the week ahead.

Now that the weather is getting warmer we will have to start walking to build up the strength to walk the 5k Race for Hope in D.C. on May 4th. We have been so grateful for the money raised by all of the teams that are planning to attend. We have never been involved in anything like this and are excited about the opportunity to participate with so many families that are experiencing the same things that we are AND to be doing it while surrounded by our friends. I expect that it will be an inspirational and emotional day. Thanks to everyone for supporting our efforts to raise money for treatments and the search for a cure.
www.braintumorsociety.org

Monday, March 24, 2008

March 24th

In general, today's meeting with the oncologist resulted in a positive report [This is a Tammy K. dictation!]. The MRI showed no change from the last one done on Feb. 28th. This is a good indicator that the spot being monitored is not a tumor, but rather irritation from radiation. The doctor would liked to have seen more improvement in this MRI, but is still satisfied with the results so far. She will continue to monitor the situation over the next three months to make sure that the spot is not growing and begins to heal.

Thanks for checking in on our progress.

Saturday, March 22, 2008

March 22nd

We are excited that sping is offically here and looking forward to the warmer weather coming soon. I said the other day that is felt better, just to say that it was sping, even if the weather was still cold. As we sat and ate breakfast this morning I noticed that the sky was a beautiful shade of blue and the grass looked greener. When we went outside after breakfast, there were snowflakes falling. No- I'm not crazy, we all saw them. Either the grass is greener or just knowing that it is spring gives us the sense that everything will be in bloom soon. Regardless- I am not wishing time move faster, but trying to take in the beauty of the day.

We are excited that the Easter Bunny will be coming tonight and ready to have him hide the baskets in the house. Last year the boys were concerned that the Eater Bunny was entering the house and Robert wrote the Bunny a note- asking him to leave the baskets on the front porch. The Easter Bunny complied and I guess that they now trust him enough to come into the house. We will of course leave out our Easter Bunny Bait and keep our fingers crossed that he leaves us baskets of treats.

Robert got a haircut today. I know! His hair had grown and needed to be trimmed. He went to the Barber Shop. He looks great and is feeling well. We return to Hopkins on Mon. for another MRI and appointment with the oncologist. We hope for a positive report and will post the results to you as well.

Happy Easter to everyone and as always thanks for your support over the changing seasons.

Wednesday, March 19, 2008

March 19th

We apologize that we have not posted anything in weeks. The last several weeks have been chaotic and we have all been doing our best to get through each day with some energy left in the evening. We have some positive news to report. Robert completed his second round of chemo and felt well during the week of treatment and the week after. He was tired, but did not feel sick. This was a great relief as they had increased the dose for the second round and for the months ahead. He worked and did not even feel as fatigued as he had last month. He is working longer days this week to make up for the long appointment day that we will have on Mon 3/24. Robert will have another MRI and we will meet with our oncologist to review the results on the same day.

As always we are so thankful for the love and support that we receive from the people closest to us, the people that surround us, and from people that we have never even met. Your prayers and support help us to find peace.

My Condition - Glioblastoma Multiforme (or GBM)

I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.

Astrocytoma

An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.

The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.

The WHO classification divides astrocytomas into four grades:

  • Grade I Pilocytic Astrocytoma
  • Grade II Low-Grade Astrocytoma
  • Grade III Anaplastic Astrocytoma
  • Grade IV Glioblastoma Multiforme (or GBM)

Characteristics

The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.

Symptoms

  • Headaches
  • Seizures or convulsions
  • Difficulty thinking or speaking
  • Behavioral or cognitive changes (related to thinking, reasoning, and memory)
  • Weakness or paralysis in one part or one side of the body
  • Loss of balance
  • Vision changes
  • Nausea or vomiting