Wednesday, December 31, 2008
Dec. 31st
Tuesday, December 30, 2008
Dec. 30th
Monday, December 29, 2008
Dec. 29th
Saturday, December 20, 2008
Dec. 19th
The boys are excited about the holidays and ask each night if this is the night that Santa will come. I love their enthusiasm and excitement. We cut down a tree and have decorated it. This year the REAL("green")tree made it into the basement- as last year we decorated a metal tree. They have both written Christmas list and are ready to deliver them to Santa at the mall.This might be the first year that they both sit with Santa. They have been good and I have a feeling that Santa will come here.
We feel that the boys have so many toys and that we are are so fortunate to have so many things. This year we will donate to a charity instead of giving them Hanukkah gifts.
I find myself reflecting a lot about the past year. The past year has been filled with emotions that have been intensified by the news of Robert's diagnosis. I will try and use those feelings to find a deeper appreciation for the day and all of the blessings that - 'that' day has to offer. To find peace in the fact that even through the toughest times we all stood together and we are stronger for it. Knowing other care is priceless. May your holidays be filled with peace and happiness.
Thursday, December 4, 2008
Dec. 4th
These days I take more time to reflect on our lives. At Thanksgiving I realized this:
I am thankful for so many things. I am thankful for the little things. I am thankful for the big things. I am thankful for the past, I am thankful for the present, I am thankful for the things that are yet to come. I am thankful for the lessons learned through my experiences and I am thankful for the people who have helped to teach me.
The Little Things:
1. Sunshine coming through the window on a cold winter morning
2. A cozy blanket and a hot cup of tea - OK - and a sweet little treat
3. A good TV show to distract me from everything else
4. A movie to make us laugh
5. Finding the perfect gift
6. A clean house
7. A phone call, an e-mail, or a card that comes in the mail
8. Getting an extra hour of sleep in the morning
9. A good photograph
10. A good hair day
The Big Things:
1. Someone listening & hearing & caring
2. Someone sharing
3. People giving their time to help you. Giving of their time and expecting nothing in return. Giving back
4. Time with family and friends. Building memories
5. Hearing the children laugh
6. A hug or a kiss. Hearing the words - 'I love you'
7. Seeing excitement in someone else's eyes
8. Knowing that others care about you and your families well-being
9. Knowing that our children are happy and content in their lives
10. Finding fun in the world
There are people, places, food, events, and things that can bring us the feeling of happiness. But - the true meaning of happiness is finding peace within your own heart and mind. Knowing, feeling, and believing that you can find happiness. I am happy to be surrounded by so many people who wish happiness for us. We are happy to have you in our lives and to have the understanding of how much you have impacted our lives/happiness. We are thankful.
Tuesday, November 25, 2008
Nov. 25th
The boys are excited to fly and we had fun packing their backpacks for the plane. They are our motivation to live well. They keep us moving in a positive direction. They help us to see the excitement in life. They give us a perspective that is uncluttered, solid, and focused on the moment - something that is difficult for the adults. As we often become overwhelmed with the responsibilities and emotions of our lives.
We are learning and trying to take time to reflect and focus on the moment. Robert and I will remind each other with a look or words to slow down, stop, and take a minute to relax. Time together is good. We want to wish everyone a Happy Thanksgiving and may you find a moment of true happiness.
Monday, November 17, 2008
Nov. 17th
Some stories are good in there content and full of hope. They are uplifting and inspirational. Stories that give me power to believe that good things can and will happen. There are people we know who do so much good, who care so deeply, and who are truly caring of others. They are selfless in their acts of kindness and expect nothing in return. These are the people who are the role models for all of us. I think often about how to give back and how to help others - it is something that we all need to find within ourselves. For now we are still trying to thank everyone for the ways that they have supported us. Please know that we are thankful.
My Condition - Glioblastoma Multiforme (or GBM)
I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.
Astrocytoma
An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.
The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.
The WHO classification divides astrocytomas into four grades:
- Grade I Pilocytic Astrocytoma
- Grade II Low-Grade Astrocytoma
- Grade III Anaplastic Astrocytoma
- Grade IV Glioblastoma Multiforme (or GBM)
Characteristics
The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.
Symptoms
- Headaches
- Seizures or convulsions
- Difficulty thinking or speaking
- Behavioral or cognitive changes (related to thinking, reasoning, and memory)
- Weakness or paralysis in one part or one side of the body
- Loss of balance
- Vision changes
- Nausea or vomiting