Wednesday, October 29, 2008
Oct. 29th
The month may have passed quickly and yet there have been many positive moments The painting is complete and the changes in the appearance of the rooms in dramatic - and we all love it. Painting took place over four days and the work accomplished was remarkable. I am grateful for the support that was provided and know that I would never have been able to do that much work on my own. I was inspired and motivated to do more then I thought was possible. Thanks Dad and the Nancarrow-Timms family. Your dedication and hard work have made a difference in our home and in our hearts.
We have many goals to fulfill. There are the goals that fall under the logistical responsibilities and those that are the personal desires. We are working toward many goals and look forward to having fun along the way. I often try and remember the goals that have already been reached when overwhelmed by the goals still ahead of us. Thanks to everyone around us who reminds us to have fun.
Cute moment of the month: Bryce and Trey running in the rain - just to run. Running and screaming around the yard - literally soaking in the water. And- all of this just after having ice cream in the middle of the day. Why not?
Sunday, October 19, 2008
Oct.19th
Friday, October 10, 2008
Oct. 10
We hope that you have a great weekend and spend it with the people who care for you.
Thanks for caring for us and we are caring for you.
Thursday, October 2, 2008
Oct. 2nd
We have been busy and active and thankful for the ability to spend time having fun. We are thankful for the time with family, and the chance to enjoy the boys. We have spent time with friends, and just been ecstatic to be surrounded by them. We are thankful for the continued support and caring attitudes of others. Your contributions to our well-being are working and we are thriving on the understanding that others care and wish us the best. It is possible to 'feel' the love.
Here is a thought that I have been contemplating today- When times are difficult, we are often given the advice to - 'live day by day' or 'take one day at a time'.
Here is a thought - some days just stink - and we have to think that the next day will be better
and - making future plans and having something to look forward to helps us to realize that situations can improve over time and that we will have fun again.
The emotional comfort & stability that allows us to look forward and plan for the future demonstrates the hope that we have in our hearts.
Wednesday, September 24, 2008
Sept. 24th
Friday, September 12, 2008
Sept. 12th
Since returning- life has picked up the pace and does seem to be moving faster then is possible. Robert has returned to work, Bryce has returned to school, Trey has attended two days at preschool, and I have made two trips to Johns Hopkins - scheduled appointments. Robert had his eyes checked again at the Wilmer Eye Institute at Hopkins. He got another good report. His vision is stable and there were no indicators of pressure on the brain. He will return in another six months for an exam.
As we come up on the 11 month marker of the day that Robert was diagnosed with a brain tumor, we are thankful for the lesson learned, the recognition of love and support, and the understanding that we have been and are blessed with good fortune. This is not to say that we are thankful for the diagnosis, but we are thankful for the increased awareness of the good fortune that still exists in our lives. We have our family and we have love.
It is sometimes difficult to watch our children grow and change and become more independent. I find myself - having to remind myself - that their changing behaviors and attitudes indicate that they are growing and developing as they should be. The fact that they are succeeding in new environments without us, means that they have learned the lessons that we have taught them. The fact that they are growing and changing physically, means that they are healthy. The fact that we are watching them change over time, means that we have had valuable time with them to build memories. I am trying not to hold on to the past or think to far into the future and am trying to enjoy the present. May you all have a great day.
Tuesday, September 2, 2008
Sept. 2nd
My Condition - Glioblastoma Multiforme (or GBM)
I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.
Astrocytoma
An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.
The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.
The WHO classification divides astrocytomas into four grades:
- Grade I Pilocytic Astrocytoma
- Grade II Low-Grade Astrocytoma
- Grade III Anaplastic Astrocytoma
- Grade IV Glioblastoma Multiforme (or GBM)
Characteristics
The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.
Symptoms
- Headaches
- Seizures or convulsions
- Difficulty thinking or speaking
- Behavioral or cognitive changes (related to thinking, reasoning, and memory)
- Weakness or paralysis in one part or one side of the body
- Loss of balance
- Vision changes
- Nausea or vomiting