Wednesday, December 31, 2008

Dec. 31st

Today we will celebrate many things. I know that we should celebrate something everyday, but some days bring us moments that will be celebrated with heightened excitement. Robert's MRI results were good and that is our greatest reason for celebration today. Of course the messages from friends brings us happiness knowing that we are surrounded by good people. Thanks for crossing fingers and toes. As one friend stated, "... the positivity meter went off the charts for the ending of 2008." She shared the thought that - on New Years Eve - every person would take a moment to be filled with hope and re-newed energy for the upcoming year. May you find THAT energy. Love to All.

Tuesday, December 30, 2008

Dec. 30th

We found out this morning that Robert will have an MRI tomorrow and meet with the oncologist just after. The MRI had been scheduled for 1/5 and the oncology appointment on 1/7. The oncologist had to reschedule due to her obligations - not because of any medical concerns with Robert. Our last report was so positive and the news relieves us until the next MRI is complete. Once the next MRI is complete, we are left hoping and praying for another good report. I don't like having to ask for much, but I won't hesitate to ask for any prayers and good wishes for another good MRI report. Thank you and may we all begin this new year with peace in our hearts.

Monday, December 29, 2008

Dec. 29th

Hope everyone had a great Holiday. Our Holidays were great and the boys were so excited this year. Their excitement is contagious and makes the holidays richer. Celebrating multiple holidays presents interesting challenges and we are trying to teach the true meaning behind each holiday -(not just the gifts). Bryce's birthday is New Years Day and it seems that there is so much going on all at once. Bryce will be turning six and we can hardly believe it. Trey likes to tell us that HE is almost seven and we all just smile and giggle. Our boys keep us focused and we find laughter in their actions and/or comments every day. Hopefully your Holiday was and will be filled with peace and happiness. Thanks for checking in!

Saturday, December 20, 2008

Dec. 19th

Really? I was just posting about Thanksgiving and now we are closer to Hanukkah & Christmas. We are doing well and are looking forward to the holidays ahead. Robert and I have each celebrated a birthday this month and no longer think much about the number, but give thanks for having had another year to celebrate. Although- I have been telling everyone that "29" is fabulous.
The boys are excited about the holidays and ask each night if this is the night that Santa will come. I love their enthusiasm and excitement. We cut down a tree and have decorated it. This year the REAL("green")tree made it into the basement- as last year we decorated a metal tree. They have both written Christmas list and are ready to deliver them to Santa at the mall.This might be the first year that they both sit with Santa. They have been good and I have a feeling that Santa will come here.
We feel that the boys have so many toys and that we are are so fortunate to have so many things. This year we will donate to a charity instead of giving them Hanukkah gifts.
I find myself reflecting a lot about the past year. The past year has been filled with emotions that have been intensified by the news of Robert's diagnosis. I will try and use those feelings to find a deeper appreciation for the day and all of the blessings that - 'that' day has to offer. To find peace in the fact that even through the toughest times we all stood together and we are stronger for it. Knowing other care is priceless. May your holidays be filled with peace and happiness.

Thursday, December 4, 2008

Dec. 4th

Our trip was fantastic and we all had a good time. The house was beautiful and close to the beach. The boys had fun playing in the sand, collecting shells, and even walking in the water. I enjoyed long walks on the beach and Robert enjoyed the time away. It was great being with everyone and I kept thinking of the memories that our children will have of the time spent with their cousins.
These days I take more time to reflect on our lives. At Thanksgiving I realized this:

I am thankful for so many things. I am thankful for the little things. I am thankful for the big things. I am thankful for the past, I am thankful for the present, I am thankful for the things that are yet to come. I am thankful for the lessons learned through my experiences and I am thankful for the people who have helped to teach me.

The Little Things:
1. Sunshine coming through the window on a cold winter morning
2. A cozy blanket and a hot cup of tea - OK - and a sweet little treat
3. A good TV show to distract me from everything else
4. A movie to make us laugh
5. Finding the perfect gift
6. A clean house
7. A phone call, an e-mail, or a card that comes in the mail
8. Getting an extra hour of sleep in the morning
9. A good photograph
10. A good hair day

The Big Things:
1. Someone listening & hearing & caring
2. Someone sharing
3. People giving their time to help you. Giving of their time and expecting nothing in return. Giving back
4. Time with family and friends. Building memories
5. Hearing the children laugh
6. A hug or a kiss. Hearing the words - 'I love you'
7. Seeing excitement in someone else's eyes
8. Knowing that others care about you and your families well-being
9. Knowing that our children are happy and content in their lives
10. Finding fun in the world

There are people, places, food, events, and things that can bring us the feeling of happiness. But - the true meaning of happiness is finding peace within your own heart and mind. Knowing, feeling, and believing that you can find happiness. I am happy to be surrounded by so many people who wish happiness for us. We are happy to have you in our lives and to have the understanding of how much you have impacted our lives/happiness. We are thankful.

My Condition - Glioblastoma Multiforme (or GBM)

I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.

Astrocytoma

An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.

The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.

The WHO classification divides astrocytomas into four grades:

  • Grade I Pilocytic Astrocytoma
  • Grade II Low-Grade Astrocytoma
  • Grade III Anaplastic Astrocytoma
  • Grade IV Glioblastoma Multiforme (or GBM)

Characteristics

The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.

Symptoms

  • Headaches
  • Seizures or convulsions
  • Difficulty thinking or speaking
  • Behavioral or cognitive changes (related to thinking, reasoning, and memory)
  • Weakness or paralysis in one part or one side of the body
  • Loss of balance
  • Vision changes
  • Nausea or vomiting