Tuesday, November 25, 2008

Nov. 25th

We have celebrated Thanksgiving with the Bruff side of the family and will fly to SC today to celebrate Thanksgiving with the Kinberg side of the family. We have so much to be thankful for and are happy to be celebrating. We will celebrate the time with family. We will celebrate the fact that we have friends who care and we will celebrate the realization that - love and support - from others is the most precious gift of all.

The boys are excited to fly and we had fun packing their backpacks for the plane. They are our motivation to live well. They keep us moving in a positive direction. They help us to see the excitement in life. They give us a perspective that is uncluttered, solid, and focused on the moment - something that is difficult for the adults. As we often become overwhelmed with the responsibilities and emotions of our lives.

We are learning and trying to take time to reflect and focus on the moment. Robert and I will remind each other with a look or words to slow down, stop, and take a minute to relax. Time together is good. We want to wish everyone a Happy Thanksgiving and may you find a moment of true happiness.

Monday, November 17, 2008

Nov. 17th

Everyone has a story. I meet people and hear of people with amazing stories. Some are sad and full of difficulties. They are hard to hear and yet there is something to be learned from it. People that we know or people that we don't - are doing it. They are pushing forward and fighting even in times of pain and fear. They are beating the odds and astounding the doctors. They are living in the moment and enjoying life.
Some stories are good in there content and full of hope. They are uplifting and inspirational. Stories that give me power to believe that good things can and will happen. There are people we know who do so much good, who care so deeply, and who are truly caring of others. They are selfless in their acts of kindness and expect nothing in return. These are the people who are the role models for all of us. I think often about how to give back and how to help others - it is something that we all need to find within ourselves. For now we are still trying to thank everyone for the ways that they have supported us. Please know that we are thankful.

Wednesday, November 12, 2008

Nov. 11th

Good news from the oncologist. The latest MRI demonstrated stability and some improvement. The doctor called Robert a 'super star' patient. We like to refer to him as the 'over-achieving' patient or our 'Super-hero." She expressed that past progress does not technically predict future progress - but it does in some respect - because: Many patients who struggle from the beginning - always struggle. For those that have responded well to treatment - there is no reason to believe that they will not continue to do well. Obviously- the doctor can not predict the future and that is why Robert will have MRI's every two months.
We will take one report at a time and hold on to the relief that we feel in the moment. We will focus on the current news and be thankful for it. We will continue holding on to the belief that life is full of 'good', 'bad', 'happiness', 'sorrow', 'expected' and 'unexpected' events and that all hold meaning. We thank you for your support and good wishes that keep us feeling strong physically and emotionally. Love is all around us.

Friday, November 7, 2008

Nov. 7th

It has almost been two months since Robert's last MRI and he will be going in for another MRI on Monday. We will get the results when we meet with the oncologist on Wed. Robert has been feeling well and working hard. We hope for more good news as we try to stay focused on all of the eventful/memorable incidences that fill our daily lives.

My Condition - Glioblastoma Multiforme (or GBM)

I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.

Astrocytoma

An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.

The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.

The WHO classification divides astrocytomas into four grades:

  • Grade I Pilocytic Astrocytoma
  • Grade II Low-Grade Astrocytoma
  • Grade III Anaplastic Astrocytoma
  • Grade IV Glioblastoma Multiforme (or GBM)

Characteristics

The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.

Symptoms

  • Headaches
  • Seizures or convulsions
  • Difficulty thinking or speaking
  • Behavioral or cognitive changes (related to thinking, reasoning, and memory)
  • Weakness or paralysis in one part or one side of the body
  • Loss of balance
  • Vision changes
  • Nausea or vomiting