Monday, May 26, 2008

May 26th

This weekend was wonderful. We had fun with family and friends and were busier then we have been in months. The weekend brought much joy and happiness to our family. I wish there was a way to share the variety of feelings and emotions that we experienced this weekend. We laughed with friends, we cried with friends, we celebrated with friends, and- at times just played without even thinking about the stresses we are under. We must continue to thank those who show unconditional generosity to our family. It is always very touching to receive love and support from those that we reach out too and overwhelming when we receive support from those that only heard of us from others. Robert said it best today, "Life is good." We are grateful for the blessing that we receive including the people who demonstrate compassion and love.

Monday, May 19, 2008

May 19th

Today we got the good news that we were praying for. The MRI results indicate that the spot IS decreasing in size. The oncologist told us that the results from last month-to this month showed the greatest decrease. She was very pleased with the scans and feels comfortable going back to the 2 month MRI schedule. Robert will begin another round of chemo on Sunday and will have only one more left the following month. I will post more details later, but we are all very tired. Robert went to work early and we spent about 6 hours at the hospital. They boys are in bed and I am just enjoying this feeling of relief and gratitude.

Saturday, May 17, 2008

May 17th

We have been busy with the daily tasks that consume all of our time. We are still functioning on a delayed reaction schedule, but are thankful for the ability to do the things that we do. Life often seems overwhelming here and then we remember that life seemed overwhelming before -(perhaps for different reasons, but overwhelming just the same). I often tell people that our schedule may not seem busy to others, but is is busier then we have been in six months and we often find ourselves exhausted at the end of the day. I am not writing this to complain but to explain that our delayed reactions are not intentional. We are happy to be exhausted if it is because we are engaged and interacting in 'life'.
Robert will have another MRI scan on Monday 5/19 and we will meet with the oncologist to review the results on the same day. We were excited about the results from the last scan and continue to pray for more good news. Please pray for the lesion that has been found to continue to decrease and heal and for a positive report. As always thanks for the incredible amount of support that you provide.

Wednesday, May 7, 2008

May 7th

I had to post to share an incident that happened to me a couple of weeks ago. I - last minute- decided to take the boys out for lunch and to run to the store for t-ball snacks. Once we got to the Quizno's I ordered and went to the register to pay. Once in front of the cashier, I realized that I had left my wallet at home. I laughed and explained what I had done and kindly asked if he could hold the order- while I went home to get my wallet. The lady in line behind me jumped in and offered me $20.00 and asked me not to take the boys home. Initially I declined and she explained that she had a child and that she would like to give me the money and have me mail her $20.00 later. I accepted, thanked her, and promised to return the money quickly. She shared with me that recently her car had broken down and someone helped her and her son and she was happy to help someone else. I got it - the 'Pay it Back Theory' She said, "It's already working" - when she returned to the register to order a sandwich to go - the cashier did not charge her because he had seen her kind gesture to me. I promised to tell everyone this story in the hopes that one day we too- can do something nice for someone else. Robert and I have been so grateful for all of the support that we have received and hope that everyone understands the gratitude that we have. We can only hope that we will be able to help and support others that way that we have been helped.

Monday, May 5, 2008

May 5th

We made it to the finish line at the Race for Hope in Washington D.C. It was the perfect day. The sun was shining - in spite of the weather reports that predicted rain all week, the team members showed up, the team members wore their team t-shirts proudly, and everyone crossed the finish line. Some team members finished faster then others, but everyone supported each other and we traveled together in spirit. That is what friendship is all about - traveling together through good times and bad and supporting each other during good times and bad. The turn-out was great and the amount of people there was exhilarating. They had something like 247 teams and 6-8 thousand participants on race day. On race day they amount of money raised was at 2.5 million and the donations are still coming in. Knowing that researchers will have funding to continue to search for a cure gives us hope that one will be found quickly. It was an emotional and inspirational day that will always be embedded in our minds. We thank everyone who supported us in our efforts to raise money for a cure. We thank everyone who continues to support us with prayers. Thanks!

My Condition - Glioblastoma Multiforme (or GBM)

I was diagnosed with Glioblastoma Multiforme (GBM). This condition has four different grades (I - IV). My tumor is a grade IV GBM. This is the most aggressive GBM tumor. I have included a little section of The Essential Guide to BRAIN TUMORS below to describe the condition more completely.

Astrocytoma

An astrocytoma develops from star-shaped glial cells (astrocytes) that support nerve cells. These tumors can be located anywhere in the brain, but the most common location is in the frontal lobe. Astrocytomas are the most common primary CNS tumor.

The physician, usually the neurosurgeon or neurooncologist, will discuss the type and location of an astrocytoma. The pathologist will assign it a grade. Astrocytomas are generally classified as low or high grade. Low-grade astrocytomas (grades I and II) are slow growing. High-grade astrocytomas (grades III and IV) grow more quickly. The main tumor type is listed for each grade. There are additional tumor types in each of these grades.

The WHO classification divides astrocytomas into four grades:

  • Grade I Pilocytic Astrocytoma
  • Grade II Low-Grade Astrocytoma
  • Grade III Anaplastic Astrocytoma
  • Grade IV Glioblastoma Multiforme (or GBM)

Characteristics

The characteristics of an astrocytoma vary depending on the tumor’s grade and location. Most people are functioning normally when diagnosed with a low-grade astrocytoma. Symptoms tend to be subtle and may take one to two years to diagnose. This is because the brain can often adapt to a slow-growing tumor for a period of time. Highgrade tumors may present with changes that are sudden and dramatic.

Symptoms

  • Headaches
  • Seizures or convulsions
  • Difficulty thinking or speaking
  • Behavioral or cognitive changes (related to thinking, reasoning, and memory)
  • Weakness or paralysis in one part or one side of the body
  • Loss of balance
  • Vision changes
  • Nausea or vomiting